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	<title>Life Without Memories &#187; Caregiver Support</title>
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	<link>http://alzheimersadvocacy.com</link>
	<description>Support for Alzheimer's Patient Caregivers</description>
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		<title>Talk to Caregiver Experts Online</title>
		<link>http://alzheimersadvocacy.com/2008/11/27/talk-to-caregiver-experts-online/</link>
		<comments>http://alzheimersadvocacy.com/2008/11/27/talk-to-caregiver-experts-online/#comments</comments>
		<pubDate>Thu, 27 Nov 2008 15:36:14 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/11/27/talk-to-caregiver-experts-online/</guid>
		<description><![CDATA[Rite-Aid has a new program for caregivers that I&#8217;m pretty excited about. Experts answer questions in an online chat format. For people who can&#8217;t attend the live chat, there is a transcript of the event. According to&#160; the email I just received, there are two upcoming chats: Wednesday, December 3, 12-1pm EST Get answers from [...]]]></description>
			<content:encoded><![CDATA[<p>Rite-Aid has a new program for caregivers that I&#8217;m pretty excited about. Experts answer questions in an online chat format. For people who can&#8217;t attend the live chat, there is a transcript of the event. According to&#160; the email I just received, there are two upcoming chats:</p>
<blockquote><p><strong>Wednesday, December 3, 12-1pm EST        <br /></strong>Get answers from Elder Law Attorney Vincent J. Russo on Elder Law, Special Needs and Estate Planning issues, and ask Social Worker Marion Somers PhD about topics ranging from home safety to senior-friendly technology.</p>
<p><strong>Thursday, December 4, 12-1pm EST </strong>      <br />Chat with a Rite Aid pharmacist about medications, therapies and interactions, and direct your questions on general caregiving to &quot;Caring Today&quot; editor Susan Strecker Richard.</p>
</blockquote>
<p>You&#8217;ll need to complete your free registration as a member of <a href="https://www.riteaid.com/myriteaid/login.jsf">Giving Care</a> before joining the chats. I just did the sign up to check things out and it was quick and painless!</p>
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		<title>The Hidden Cost of Alzheimer&#8217;s &#8211; Relationships</title>
		<link>http://alzheimersadvocacy.com/2008/08/23/the-hidden-cost-of-alzheimers-relationships/</link>
		<comments>http://alzheimersadvocacy.com/2008/08/23/the-hidden-cost-of-alzheimers-relationships/#comments</comments>
		<pubDate>Sat, 23 Aug 2008 12:07:24 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/08/23/the-hidden-cost-of-alzheimers-relationships/</guid>
		<description><![CDATA[I had a request to talk about another hidden cost of Alzheimer&#8217;s &#8211; relationships. If you have opted to take on the care for a relative with Alzheimer&#8217;s at home, you probably hear a lot of positive comments. &#8220;Good for you.&#8221; &#8220;I&#8217;m so glad to hear that people still care about their parents.&#8221; &#8220;I wish [...]]]></description>
			<content:encoded><![CDATA[<p>I had a request to talk about another hidden cost of Alzheimer&#8217;s &#8211; relationships. If you have opted to take on the care for a relative with Alzheimer&#8217;s at home, you probably hear a lot of positive comments.<br />
&#8220;Good for you.&#8221;<br />
&#8220;I&#8217;m so glad to hear that people still care about their parents.&#8221;<br />
&#8220;I wish more people would do that.&#8221;</p>
<p>Yes, they&#8217;re really pleased you are keeping your loved one home and providing a good bit of the care, right up to the second they realize it will affect them. A single person caring for a parent often has to choose between having a serious relationship and the parent. Vacations, sleep overs and leisurely mornings over coffee and pastries are all things it is difficult to commit to. Unfortunately, they are all things that a person you are dating seriously usually expects. </p>
<p>For many people, starting a relationship while you are caring for a loved one with Alzheimer&#8217;s is almost impossible. Someone who could be Mr. or Mrs. Right is often scared off by the fact that you are pretty tied down. After all, it isn&#8217;t like he or she has been dating you for a year and is madly in love, so making a choice to see someone without baggage instead is pretty easy at this point. So, how do you manage to have a relationship while you&#8217;re an Alzheimer&#8217;s patient caregiver? </p>
<p>I don&#8217;t have an answer for everyone, because every situation is different. However, I do know that it is pretty unlikely that you&#8217;ll find someone special sitting in the living room! You&#8217;ll need to find a way to get out at least a few hours a week, which should be something everyone who is a caregiver should do anyway, since it helps relieve stress and helps you recharge your caregiver batteries. </p>
<p>If you haven&#8217;t been socializing at all, maybe you should start by finding a &#8220;children of parents with Alzheimer&#8217;s support group&#8221; to go to. Get out, talk to people and blow off some steam. At the very least, you may meet some friends that truly understand what you are going through, because they&#8217;re all struggling with the same issues.</p>
<p>Has someone offered to take over mom or dad&#8217;s care for a week so you have time to get away? You may want to take a <a href="http://www.alzheimersnotes.com/revisiting-cruises-for-alzheimers-caregivers/">caregivers cruise</a>. </p>
<p>If you&#8217;d rather just get away from the stress and worry for a bit, attend church or join a local group that has similar interests, such as a bird watchers group or a knitting circle. Again, you may not meet your soul mate, but meeting new people is a good first step. </p>
<p>Have you tried dating while caring for an Alzheimer&#8217;s victim? I&#8217;d love to hear your tips for dealing with this tough issue.</p>
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			<wfw:commentRss>http://alzheimersadvocacy.com/2008/08/23/the-hidden-cost-of-alzheimers-relationships/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<title>The Hidden Cost of Alzheimer&#8217;s Disease</title>
		<link>http://alzheimersadvocacy.com/2008/06/16/the-hidden-cost-of-alzheimers-disease/</link>
		<comments>http://alzheimersadvocacy.com/2008/06/16/the-hidden-cost-of-alzheimers-disease/#comments</comments>
		<pubDate>Mon, 16 Jun 2008 15:22:00 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/06/16/the-hidden-cost-of-alzheimers-disease/</guid>
		<description><![CDATA[You are on your way out the door for an important business meeting when you get the dreaded call &#8211; your dad somehow got past the vigilant staff at the nursing home and fell down several steps. How could a man who can barely shuffle to the bathroom and who forgets how to button his [...]]]></description>
			<content:encoded><![CDATA[<p>You are on your way out the door for an important business meeting when you get the dreaded call &#8211; your dad somehow got past the vigilant staff at the nursing home and fell down several steps. How could a man who can barely shuffle to the bathroom and who forgets how to button his shirt have the necessary stealth and agility to escape from the day room and pass two or three workers on his way to the stairs? As you change your plans, you wonder how much longer your boss will be understanding of your missed meetings, late arrivals and other issues related to your sick parent. And you aren&#8217;t even providing home care! </p>
<p>People talk a lot about the cost of medical care, caregivers, day cares and equipment, but there is another very real cost &#8211; the careers of family members. I&#8217;ve talked before about how nice it is to freelance or have a flexible job, but if you are a lawyer, a vice president of a major corporation, or a sales clerk at the local big box store, you don&#8217;t have the same leeway I have. I wonder how many people have been passed over for promotions, have missed out on important projects, or have even lost jobs (Yeah, FMLA sounds super, but it doesn&#8217;t help everyone.) because of dealing with constant Alzheimer&#8217;s related problems during work hours?</p>
<p>Some people make the decision to put careers first and simply refuse to deal with problems during work hours. They even opt to leave a family member home alone, locked in the house, when the caregiver doesn&#8217;t show up. Perhaps they will be lucky and come home to a presentable home and a safe family member, but there is a very real possibility that the house will be ablaze and the Alzheimer&#8217;s victim will be trapped inside instead. To me, and to most people who live with an Alzheimer&#8217;s patient, this isn&#8217;t a solution.</p>
<p>I&#8217;d start out by asking my boss for a meeting. If he or she is a decent human being, you may be able to set up some solutions in advance, such as having a few part time or temp workers with very flexible schedules ready to fill in for you if there is an emergency. Making up missed hours by staying later or working on a Saturday may also work, as long as you aren&#8217;t in retail. Perhaps your boss will even be willing to let you work from home on days when the caregiver doesn&#8217;t make it in or on days when your family member needs to visit a doctor.</p>
<p>Do you have a story about the hidden cost of Alzheimer&#8217;s? I&#8217;d really like to know how much of a problem it is.</p>
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			<wfw:commentRss>http://alzheimersadvocacy.com/2008/06/16/the-hidden-cost-of-alzheimers-disease/feed/</wfw:commentRss>
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		<title>Free Giving Care/Taking Care Workshop in Delaware</title>
		<link>http://alzheimersadvocacy.com/2008/05/13/free-giving-caretaking-care-workshop-in-delaware/</link>
		<comments>http://alzheimersadvocacy.com/2008/05/13/free-giving-caretaking-care-workshop-in-delaware/#comments</comments>
		<pubDate>Tue, 13 May 2008 16:27:51 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/05/13/free-giving-caretaking-care-workshop-in-delaware/</guid>
		<description><![CDATA[If you are in the Delaware area, this sounds like a really nice program. On Wednesday, May 14th, there is a free Giving Care/Taking Care Caregiver Skills Program on how to care for older adults at home. It is from 10am to 3pm at the Christiana Presbyterian Church, which is located at 1100 Church Road, [...]]]></description>
			<content:encoded><![CDATA[<p>If you are in the Delaware area, this sounds like a really nice program. On Wednesday, May 14th, there is a free Giving Care/Taking Care Caregiver Skills Program on how to care for older adults at home. It is from 10am to 3pm at the Christiana Presbyterian Church, which is located at 1100 Church Road, Newark. Lunch and materials are included. You must pre-register by calling 302-255-1040. </p>
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			<wfw:commentRss>http://alzheimersadvocacy.com/2008/05/13/free-giving-caretaking-care-workshop-in-delaware/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Are You Still Using Your Electric Scooter or Wheelchair?</title>
		<link>http://alzheimersadvocacy.com/2008/03/24/are-you-still-using-your-electric-scooter-or-wheelchair/</link>
		<comments>http://alzheimersadvocacy.com/2008/03/24/are-you-still-using-your-electric-scooter-or-wheelchair/#comments</comments>
		<pubDate>Tue, 25 Mar 2008 00:08:53 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/03/24/are-you-still-using-your-electric-scooter-or-wheelchair/</guid>
		<description><![CDATA[Electric scooters and wheelchairs are a wonderful help for Alzheimer&#8217;s patients in the middle stages of the disease. However, there comes a time when they can no longer sit up and the scooter stops being used. William&#8217;s scooter has been tucked away in a corner for 8 months as we debated what to do with [...]]]></description>
			<content:encoded><![CDATA[<p>Electric scooters and wheelchairs are a wonderful help for Alzheimer&#8217;s patients in the middle stages of the disease. However, there comes a time when they can no longer sit up and the scooter stops being used. William&#8217;s scooter has been tucked away in a corner for 8 months as we debated what to do with it. Today, we decided to try to see if we could find someone who could use it who didn&#8217;t have insurance to cover a new one of their own. </p>
<p>So, for the last hour or so, I&#8217;ve been crying my eyes out reading the emails from needy people in my dinky local area who don&#8217;t have insurance and don&#8217;t have the funds to buy one for family members with missing limbs and crippling conditions. I wish I had more than one to give. </p>
<p>If you have an electric scooter or wheelchair in good condition that is gathering dust because you think no one will want it, will you consider finding it a new home? You&#8217;d be amazed at the response on your local Freecycle. (<a href="http://www.freecycle.org/">Freecycle</a> is through Yahoo groups and is broken up into local regions to make it easy to give away and get useful things that would have ended up being unused or thrown away.)</p>
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			<wfw:commentRss>http://alzheimersadvocacy.com/2008/03/24/are-you-still-using-your-electric-scooter-or-wheelchair/feed/</wfw:commentRss>
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		<title>Get Money Back With Caregivers Marketplace</title>
		<link>http://alzheimersadvocacy.com/2008/03/07/get-money-back-with-caregivers-marketplace/</link>
		<comments>http://alzheimersadvocacy.com/2008/03/07/get-money-back-with-caregivers-marketplace/#comments</comments>
		<pubDate>Fri, 07 Mar 2008 12:54:34 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/03/07/get-money-back-with-caregivers-marketplace/</guid>
		<description><![CDATA[I just found out about the Caregivers Marketplace. Sign up is free and then they give you money back for some of the things you buy to care for Alzheimer&#8217;s patients, diabetes patients, etc. The only catch is that they need your original receipt, so you can&#8217;t do a Walgreens rebate and get the rebate [...]]]></description>
			<content:encoded><![CDATA[<p>I just found out about the <a href="http://www.thecaregiversmarketplace.com/">Caregivers Marketplace</a>. Sign up is free and then they give you money back for some of the things you buy to care for Alzheimer&#8217;s patients, diabetes patients, etc. The only catch is that they need your original receipt, so you can&#8217;t do a Walgreens rebate and get the rebate from Caregivers Marketplace, too. </p>
<p>You have to purchase 5 products before you send in your receipts and their cash back form. The qualifying products aren&#8217;t all specialized things like Depends, either. I saw Cottenelle Fresh Wipes and some baby diapers on the list. </p>
<p>I&#8217;m thinking that it would be nice to save up the money back for a special treat for the caregiver &#8211; a manicure, an espresso, a day at the movies, or what have you. </p>
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		<title>Caregiver Stress</title>
		<link>http://alzheimersadvocacy.com/2008/01/27/caregiver-stress/</link>
		<comments>http://alzheimersadvocacy.com/2008/01/27/caregiver-stress/#comments</comments>
		<pubDate>Sun, 27 Jan 2008 13:46:22 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2008/01/27/caregiver-stress/</guid>
		<description><![CDATA[I was talking to someone who is caring for his wife, who has Alzheimer&#8217;s, with very little support the other day. He said, &#8220;It&#8217;s like being in prison.&#8221; He was out for a few short moments because he found a family member willing to watch her while he ran up the street to do errands. [...]]]></description>
			<content:encoded><![CDATA[<p>I was talking to someone who is caring for his wife, who has Alzheimer&#8217;s, with very little support the other day. He said, &#8220;It&#8217;s like being in prison.&#8221; He was out for a few short moments because he found a family member willing to watch her while he ran up the street to do errands. It turned out one of the things he needs was 20 minutes away and he couldn&#8217;t leave the person giving him a break for the hour it would take to get the item. </p>
<p>Caring for a person with Alzheimer&#8217;s is very stressful and we need to remember to take care of ourselves. This man was burned out and exhausted and needed more than a few minutes&#8217; break, but he relies on friends and family for help and they aren&#8217;t really available. There must be a solution for people who don&#8217;t have the money to pay for qualified help. I&#8217;ve mentioned before that finding someone to barter care with is one solution.  They watch the person with Alzheimer&#8217;s for a few hours and you clean their gutters and run to the store. However, that isn&#8217;t really enough of a break. There&#8217;s still no down time, no way to really relax. </p>
<p>If you have a great solution, I&#8217;d love to hear it.</p>
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		<title>Christmas Gifts for Alzheimer&#8217;s Patients</title>
		<link>http://alzheimersadvocacy.com/2007/11/04/christmas-gifts-for-alzheimers-patients/</link>
		<comments>http://alzheimersadvocacy.com/2007/11/04/christmas-gifts-for-alzheimers-patients/#comments</comments>
		<pubDate>Sun, 04 Nov 2007 20:34:00 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2007/11/04/christmas-gifts-for-alzheimers-patients/</guid>
		<description><![CDATA[The Alzheimer&#8217;s Association has created a list of useful, safe gifts for people with advanced Alzheimer&#8217;s. identification bracelet, such as the one offered through MedicAlert + Alzheimer&#8217;s Association Safe Return. comfortable, easy-to-remove clothing audiotapes of favorite music or books videos of favorite movies, animals, sports team or travel destination subscriptions to magazines that reflect hobbies, [...]]]></description>
			<content:encoded><![CDATA[<p>The Alzheimer&#8217;s Association has created a list of useful, safe gifts for people with advanced Alzheimer&#8217;s. </p>
<blockquote><p>identification bracelet, such as the one offered through MedicAlert + Alzheimer&#8217;s Association Safe Return.<br />
comfortable, easy-to-remove clothing<br />
audiotapes of favorite music or books<br />
videos of favorite movies, animals, sports team or travel destination<br />
subscriptions to magazines that reflect hobbies, such as a gardening or cars<br />
warm blankets or quilts<br />
photo albums</p></blockquote>
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		<title>Tips for the Holidays from the Alzheimer&#8217;s Association</title>
		<link>http://alzheimersadvocacy.com/2007/11/02/tips-for-the-holidays-from-the-alzheimers-association/</link>
		<comments>http://alzheimersadvocacy.com/2007/11/02/tips-for-the-holidays-from-the-alzheimers-association/#comments</comments>
		<pubDate>Fri, 02 Nov 2007 20:30:40 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2007/11/02/tips-for-the-holidays-from-the-alzheimers-association/</guid>
		<description><![CDATA[The Alzheimer&#8217;s Association has put together a wonderful set of tips for making the holidays easier for the caregiver, visiting family members and the Alzheimer&#8217;s patient. One thing I really liked was their suggestion to have the Alzheimer&#8217;s patient help prepare food. I can&#8217;t remember where I read that someone noticed her family member with [...]]]></description>
			<content:encoded><![CDATA[<p>The Alzheimer&#8217;s Association has put together a wonderful set of <a href="http://www.alz.org/living_with_alzheimers_holidays.asp">tips for making the holidays easier</a> for the caregiver, visiting family members and the Alzheimer&#8217;s patient. One thing I really liked was their suggestion to have the Alzheimer&#8217;s patient help prepare food. I can&#8217;t remember where I read that someone noticed her family member with Alzheimer&#8217;s restless hands and put a bowl of beans in front of her. The family member snapped the bean pieces and everyone enjoyed the simple string bean dish so much more knowing that she has still participated in cooking that special family dinner. Things like this are so easy and simple that we often overlook them in the hustle and bustle of the holidays.</p>
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		<title>Forgetfulness Doesn&#8217;t Have to Mean Alzheimers</title>
		<link>http://alzheimersadvocacy.com/2007/10/21/forgetfulness-doesnt-have-to-mean-alzheimers/</link>
		<comments>http://alzheimersadvocacy.com/2007/10/21/forgetfulness-doesnt-have-to-mean-alzheimers/#comments</comments>
		<pubDate>Sun, 21 Oct 2007 23:51:36 +0000</pubDate>
		<dc:creator>KThomas</dc:creator>
				<category><![CDATA[Caregiver Support]]></category>

		<guid isPermaLink="false">http://alzheimersadvocacy.com/2007/10/21/forgetfulness-doesnt-have-to-mean-alzheimers/</guid>
		<description><![CDATA[I wrote an article on reasons for forgetfulness today for Suite 101. Did you know that Lyme Disease, thyroid problems and a host of other things could cause forgetfulness? I talk to people all the time who fear that they have early onset Alzheimer&#8217;s, only to find that their forgetfulness was caused by something else. [...]]]></description>
			<content:encoded><![CDATA[<p>I wrote an article on <a href="http://alzheimers-disease.suite101.com/article.cfm/diagnosing_alzheimers_disease">reasons for forgetfulness</a> today for Suite 101. Did you know that Lyme Disease, thyroid problems and a host of other things could cause forgetfulness? I talk to people all the time who fear that they have early onset Alzheimer&#8217;s, only to find that their forgetfulness was caused by something else. I wrote this article hoping that someone who was fearful about going to the doctor over their symptoms would realize that it could be good news, or at least something that already has a cure.</p>
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